Recently someone said something to me about the boys’ feeding tubes that I haven’t been able to shake. The comment was, “It must be convenient to feed them when they’re...

Today I carted the boys to the hospital for their first nephrology (kidney) appointment. They’ve had ultrasounds and things before but we met our nephrologist today and went over what...

I wrote this two weeks ago and then forgot to post it… whooops! But, here’s a glimpse into a day in my life and a bit of info about the...

Every 2 weeks, we meet with a team of therapists and doctors to help the boys with their feeding issues (to one day get off the G-tube). The team has...

Axel had his G-tube placed on October 29th. It was quite different than Jaxon’s procedure because Jaxon got his while we were still in the NICU whereas Axel did it...

I’ve been thinking about writing this for awhile. This is a peek into our lives and how we feed our twins which looks different than the average family. Jaxon has...

Axel is finally home!! He spent a total of 147 days in the NICU and is now home with his brother Jaxon, who spent 135 days in NICU. It is...

This is a long update about Axel’s current situation. We are so frustrated and it seems like we keep going backwards. Previous to now, he was happily (ok not always...

Jaxon is home! My big “little” twin (younger by one minute), the recipient in Twin to Twin Transfusion Syndrome and the larger but sicker twin when born… is home! It’s...

A few days after Axel and Jaxon were born at 27 weeks 2 days, we were told they each had brain bleeds. This is also known as an intraventricular hemorrhage....

For some almost-term (or term) babies, feeding is all they really need to learn in the NICU. These babies are called “feeders and growers” and are usually only in the...

Today is 100 days in the NICU for the boys and they are now 41w 5d gestational age. Where has the time gone? Soon I’ll have to go back and...