Category_Physio No, My Children's Feeding Tubes Aren't Convenient Recently someone said something to me about the boys’ feeding tubes that I haven’t been able to shake. The comment was, “It must be convenient to feed them when they’re...
Axel's Kidneys An Update on Axel's Kidneys Today I carted the boys to the hospital for their first nephrology (kidney) appointment. They’ve had ultrasounds and things before but we met our nephrologist today and went over what...
Category_Medical Motherhood A Day in the Life (and A Medical Update) I wrote this two weeks ago and then forgot to post it… whooops! But, here’s a glimpse into a day in my life and a bit of info about the...
Brain Bleeds Feeding Update: Why They Won't Take a Bottle Anymore Every 2 weeks, we meet with a team of therapists and doctors to help the boys with their feeding issues (to one day get off the G-tube). The team has...
Category_Medical Motherhood Axel's G-Tube Surgery Axel had his G-tube placed on October 29th. It was quite different than Jaxon’s procedure because Jaxon got his while we were still in the NICU whereas Axel did it...
Brain Bleeds What Tube Feeding Our Complicated Twins is Like I’ve been thinking about writing this for awhile. This is a peek into our lives and how we feed our twins which looks different than the average family. Jaxon has...
Category_Medical Motherhood>NICU Mom Life Axel is Home! (147 Days in the NICU) Axel is finally home!! He spent a total of 147 days in the NICU and is now home with his brother Jaxon, who spent 135 days in NICU. It is...
Category_Medical Motherhood Helping Axel’s NICU Feeding Issues: G-Tube or NG? This is a long update about Axel’s current situation. We are so frustrated and it seems like we keep going backwards. Previous to now, he was happily (ok not always...
Category_Medical Motherhood>NICU Mom Life Jaxon is Home! (135 Days in the NICU) Jaxon is home! My big “little” twin (younger by one minute), the recipient in Twin to Twin Transfusion Syndrome and the larger but sicker twin when born… is home! It’s...
Brain Bleeds Post-IVH Hydrocephalus and VP Shunt Surgeries: Jaxon’s Story A few days after Axel and Jaxon were born at 27 weeks 2 days, we were told they each had brain bleeds. This is also known as an intraventricular hemorrhage....
Category_Medical Motherhood>NICU Mom Life The Last Step in the NICU: Conquering Feeding For some almost-term (or term) babies, feeding is all they really need to learn in the NICU. These babies are called “feeders and growers” and are usually only in the...
Category_Medical Motherhood>NICU Mom Life CP, ROP, G Tubes and More (Oh My!) - NICU Progress Update Today is 100 days in the NICU for the boys and they are now 41w 5d gestational age. Where has the time gone? Soon I’ll have to go back and...