Mother’s Day is right around the corner! Last year was technically my first Mother’s Day, but the boys were still in very critical condition and things changed by the hour....

On March 20, we were at our Children’s Hospital for a day of appointments as part of the NICU follow up clinic. This clinic does just what it sounds like...

It’s 10:48pm on St. Patrick’s Day but I made it! We had these St. Patrick’s Day twin photos taken last week by our amazing friend Rachelle, owner of Rachelle Gregory...

In case you’re new here, both my twins have feeding tubes – G-tubes to be precise. This means they get 99% of their nutrition through tubes surgically implanted in their...

We’ve been home for the same amount of time the boys spent in the NICU now (5 months), so it’s about time I finally got around to writing out Axel’s...

Jaxon had his fourth shunt surgery two weeks ago. This was an emergency surgery to revise his existing VP shunt, and his second revision so far. Oy. His first shunt...

Recently someone said something to me about the boys’ feeding tubes that I haven’t been able to shake. The comment was, “It must be convenient to feed them when they’re...

I knew I wanted to give back to the hospital where my boys fought to live when they were still there. But, WHAT exactly I was going to do and...

Today I carted the boys to the hospital for their first nephrology (kidney) appointment. They’ve had ultrasounds and things before but we met our nephrologist today and went over what...

I don’t want to see green towels again. That’s just one way the NICU life has changed me. I didn’t realize how much until my (brief) hospital stay with Axel...

I wrote this two weeks ago and then forgot to post it… whooops! But, here’s a glimpse into a day in my life and a bit of info about the...

We were lucky enough to not spend Christmas in the NICU (just all summer!), so I don’t have first-hand experience with actual Christmas time in the NICU. I can imagine...