This is a long update about Axel’s current situation. We are so frustrated and it seems like we keep going backwards. Previous to now, he was happily (ok not always...

Jaxon is home! My big “little” twin (younger by one minute), the recipient in Twin to Twin Transfusion Syndrome and the larger but sicker twin when born… is home! It’s...

A few days after Axel and Jaxon were born at 27 weeks 2 days, we were told they each had brain bleeds. This is also known as an intraventricular hemorrhage....

Being a mom is hard work. You hear that sentence everywhere from everyone, and it’s true. Being a NICU mom, and a twin mom, has added levels of difficulty, but...

For some almost-term (or term) babies, feeding is all they really need to learn in the NICU. These babies are called “feeders and growers” and are usually only in the...

Being a NICU mom means living in an anxious state of mind all the time. Sometimes without even realizing it. I drive to the hospital with Waze on. Not because...

I could have titled this post “A Walk to Remember.” Aaahaha see what I did there. Cheeseball alert. But seriously. After over 100 days in the NICU, it starts to...

I went to the post office today. For the stupidest reason. Because of our hectic hospital schedule, I Amazon Primed a pack of toilet paper. Listen, the only reason someone...

Today is 100 days in the NICU for the boys and they are now 41w 5d gestational age. Where has the time gone? Soon I’ll have to go back and...

Today is your due date. You’ve been here for so long already. 3 months premature almost to the day (April 26). I was so naive back then. I knew the...

For 2 entire months, I didn’t go anywhere except the hospital to visit the boys in the NICU and home… with a stop at a gas station or two along...

The past 8 weeks in the NICU with our 27 weeker TTTS survivor twins has both been the longest 2 months of my life and also the shortest. I have...