Is Everyone Making Bread Without Me? (Our Life During COVID-19)

Finding a Christmas or birthday gift for a child with CVI is a tough task! Kids with CVI have trouble processing vision, and depending on their range score, may have...

Last month, the boys got to try out this little power car which is adapted to hold the positioning seats they need to stay upright (different ones for A &...

Last month, I had the amazing opportunity to do another MEDEK/CME intensive with the boys – close to home! There are no dedicated, 100% CME physios in my entire province...

I haven’t had the heart to write a lot lately. So much is going on, but my brain is too exhausted to then think it out into words most of...

I’m writing the following as a peek into my real life and what it’s like to go to appointments every day with the boys’ G-tubes and reflux. Today I had...

In May 2019, we attended our first MEDEK intensive, also known as CME or Cuevas Medek Exercises. For those parents not “in the know” with special needs lingo, it’s a...

This week I wrote an Instagram post about being angry, about how advocating for my boys hasn’t gotten anywhere. We still don’t get hands-on physio, rarely OT, etc. I thought...

If you have a medically complex little one, you know how quickly all the STUFF adds up. Besides regular baby stuff, I’m talking about all the physio and occupational therapy...

A few weeks ago, I was rather proud of myself for getting the boys out early for their big appointment and for doing the whole day by myself. It was...

On March 20, we were at our Children’s Hospital for a day of appointments as part of the NICU follow up clinic. This clinic does just what it sounds like...

Jaxon had his fourth shunt surgery two weeks ago. This was an emergency surgery to revise his existing VP shunt, and his second revision so far. Oy. His first shunt...